Teach the Children

I paused, took a deep breath, then read through the problem again. It still looked like a tangle of black yarn with no beginning and no end.

calculus.jpg

Okay, okay, I can do this. Line by line. Sentence by sentence.

I read the first sentence: “An island is 2 miles due north of its closest point along a straight shoreline.” Oh God! What the hell does that mean?

“Closest point along…” What? There’s no way I can figure this out.

I felt my heart pounding in my chest. C’mon, breathe.

What if I draw a picture?

“An island...” I could do that.

“2 miles due north of its closest…” Another deep breath. Perhaps if I skip ahead.

“a straight shoreline.” I could draw a straight shoreline.

I reread the first part of the sentence. Oh, the island is north of the shoreline. I adjusted the drawing—shoreline on the bottom, island above it. Oh, 2 miles above it.

Bit by bit, I managed to make sense of the problem, every so often having to inhale deeply to prevent myself from panicking. Once I completed the picture, I figured out how to translate it into variables and equations. Solving it was a piece of cake, I’d already mastered implicit differentiation.

Before the brain surgeries, I would have flown through the problem, thinking it through as I read it, sketching the picture quickly while incorporating the variables into the picture, then writing the equations without any hesitation.

The filters responsible for processing input were damaged by my brain surgeries—pieces of information often carry the same value. My brain had trouble sorting through large volumes of data. I now thought more slowly, much more slowly. Seeing the bigger picture was more of a challenge—I had to think through each piece of the puzzle before I was able to understand how it fit it into the puzzle as a whole. I had to take one step at a time. There were no shortcuts.

My neuropsychologist explained that I’d lost facility but not capacity: my ability to access data and my processing speed had decreased, but my brain power was in tact.

In order to reclaim my role as a teacher, I had to relearn mathematics, from multiplications tables and adding fractions, to college algebra, calculus, and beyond. The main issue I had to contend with was my poor memory. I looked up how to add fractions when I couldn’t help my daughter with her algebra homework. I needed to relearn the quadratic formula in order to solve an example in my college algebra book. Once I got the nudge I needed, I was off and running.

My difficulties taught me that struggling students did not necessarily lack in capacity as I used to believe, that in fact, it was more a matter of facility. I realized that most of my students had issues remembering notation and terminology. Once I reminded them of the relevant information, they had little difficulty solving the problem.

Now, when I teach, I remind them of earlier material, earlier terminology, as I move onto the new, making connections, helping them tie various bits of the material together, showing them that the techniques they have learned throughout the years apply to the new material. I teach them to address the issue of being overwhelmed by the material, by breaking it down into smaller, more manageable, chunks. I show them that though they may not believe in their own ability, they do in fact have the tools, it is a matter of accessing them.

The brain surgeries also damaged my ability to think sequentially, linearly. In the pre-bleed days, I only recognized linear patterns. I was skeptical of other, nonlinear thinking styles. I saw them as fuzzy, lumping them with hazy “woo-woo” terms like intuition and instinct. If a person couldn’t explain how they arrived at a solution, whether correct or incorrect, I regarded them as illogical, as less. It didn’t occur to me that there were other ways to recognize patterns. But now, having had to work my way around the faulty wiring in my brain, I was better able to appreciate different thinking styles.

In the past, when people found out I was a mathematician and responded along the lines of “You must be really smart,” I used to respond with an insincere deprecating remark, “Math is just a different way of thinking.” I still respond with the same remark, but now I’m sincere about it. I no longer regard instinct and intuition as woo-woo. To me, these are “legitimate” terms to describe the hard to explain, nonlinear thinking.

I now work to address the variety of thinking styles I come across in the classroom. When I have trouble understanding students’ difficulties recognizing linear patterns, I work with the class as a whole to figure them out and adjust my explanations accordingly.

My disability also taught me to better bond with people. Having been fiercely independent and socially awkward, learning to ask for help did not come easily to me. But I had no choice—I couldn’t manage on my own. I was reluctant to expose my vulnerabilities, but as I learned to let my guard down, I discovered that by opening myself up to others, they opened up to me. I also learned to make stronger connections. From the shy introvert that I used to be, I grew into a socially adept extrovert.

As a result I was now able to connect with my students, which in turn improved the atmosphere in the classroom and created a better teaching and learning environment.

My teaching skills improved dramatically. And where in the past I enjoyed teaching, I am now passionate about it, loving the challenges and reveling in my interactions with my students.

Optimism

https://www.maxpixel.net/Gas-Station-Fuel-Diesel-Fuel-Gas-Pump-Energy-Pump-1596622

https://www.maxpixel.net/Gas-Station-Fuel-Diesel-Fuel-Gas-Pump-Energy-Pump-1596622

I pulled away from the gas pump—

Klunk!

I looked to Joyce. “What the hell was that?”

“I think that must have been the nozzle.”

I drew a blank. “What do you mean it was the nozzle? Which nozzle?”

Joyce shrugged. “The gas nozzle. I guess you forgot to take it out.”

My inner volcano, usually dormant, erupted with a massive explosion as I slammed on the brakes.

How dare Joyce accuse me? I forgot to take the nozzle out? “I asked you to keep an eye on it while I was in the store!”

“I guess I didn't hear you.”

Of course she'd heard me. Hadn't she nodded?

Lava spewed over the edge of the crater—she had nodded. I knew she had.

I yanked the steering wheel all the way around to the left and stomped on the gas pedal. The car shot forward, tires shrieking. I circled the gas pump, tore back into the spot I'd just vacated, and jerked to a stop.

Joyce reached for her door handle. “I'll go get it.”

I'll get it!”

I yanked on the door handle, flung the door open, erupted out of the car, slammed the door shut, and stormed over to the nozzle. I bent over, picked it up, marched over to the pump, shoved the nozzle onto its stand, and replaced the gas cap. I wrenched open the car door and threw myself into the car seat.

“Maybe I should drive.”

I clenched my jaw. “No. I'll drive.”

“You sure it's a good idea?”

“Yes. I'll be fine!” I jammed the keys into the ignition.

A wisp of thought floated clear of the ash filled mood—I should have checked the nozzle when I got back from the store. Billows of smoke engulfed the thought. It was her fault.

A tendril of reason wafted out of the crater—I shouldn't drive like this.

I'll be fine.

I had the steering wheel in a death grip. I unclamped my right hand to put the car into Drive, and another tendril struggled to escape the blackened atmosphere—I should stay parked until the ashes clear.

I took a deep breath, willing the thought to stick. A light breeze blew several wisps of reason my way, then several more, until I could no longer ignore their message.

By the time I pulled away from the gas pump, I regained my sanity, though keeping the cap on the volcano was a struggle. Minutes later—though the minutes felt like an eternity—I was able to make eye contact with Joyce and apologize sheepishly for my loss of control.

This wasn't the first time since the brain surgeries that my emotions completely overpowered me, suppressing all reason. It wasn’t even the worst.

Sudden eruptions of rage are not uncommon among us brain injury survivors. Brain injuries often damage and sometimes destroy our emotion-monitors. Conservative estimates indicate that about one-third of traumatic brain injury survivors exhibit aggressive behavior, including explosive rage. I’m one of the lucky ones—though I am more prone to rage than I used to be, I have never fully lost control, nor have I caused irreparable damage.

As my embarrassment over my explosion at the gas pump waned, it was replaced by resentment. I felt cheated—once more the bloody brain had betrayed me. It had been three or four years since I’d lost my temper like that. I'd allowed myself to believe that maybe, just maybe, I was far enough along in my recovery that I was past such things.

I should have known that such a level of recovery was wishful thinking on my part.

When I thought about it some more, I realized that throughout those years there had been plenty of times when I'd gone from being a bit upset to red hot fury in a nanosecond. But I had managed to regain control within seconds—fast enough that no one noticed my true state of mind.

The bloody brain blindsides me over and over again. I've ascribed it to my poor memory: if you can't remember, you can't learn what to avoid, what to watch for, what to do differently next time. If I remembered my difficulties from one eruption to the next, perhaps I'd learn some anger management techniques.

But recently, I realized that “poor memory” is an oversimplification. Wishful thinking carries as much if not more of the blame.

Though I try to be realistic, deep down inside, I keep hoping that the plasticity of the brain, the ongoing healing, will bring me close to the neuro-typical norm.

Issues such as sudden explosions of rage, sever sensory overload, and incapacitating headaches now occur much less frequently than they did during the first couple of years after the surgeries. Often, when there is nothing or no one to jog my memory, I start believing that I have experienced a long rough patch-free spell. And whenever there are signs of improvement, or lack of signs of deterioration, I tend to be optimistic. More often than not, overly optimistic.

Cockles

https://pxhere.com/en/photo/1373729

https://pxhere.com/en/photo/1373729

I thanked my Facebook friends for their good wishes. “You’ve warmed the cockles of my heart.” scrolled down some more and logged out.

Eyelids heavy, I put my phone down, and rolled over. I was confident I’d get back to sleep. I sank into my pillow, relaxed my muscles one by one, and focused on my breathing…

My thoughts popped in between breaths. Aren’t cockles seafood? Like mussels? No, no, don’t go there. I knew I was in trouble now—that song...

As she wheeled her wheelbarrow
Through the streets broad and narrow
Crying "cockles and mussels, alive, alive, oh"

Alive, alive, oh
Alive, alive, oh

Ever since the surgeries, no matter how tired I am, I have difficulties getting a good night’s sleep. Falling asleep is often a problem, especially after I wake up in the middle of the night. And once my thoughts start darting around, chances are that I’ll stay awake until it’s time to get up.

Last night at 4:45 a.m., I woke up for no apparent reason. I tried to get back to sleep by relaxing my entire body—toes, feet, legs, torso, hands, arms, shoulders, neck, face. But it wasn’t happening. I thought that scrolling through Facebook would help. Sometimes it does. When I found my eyelids getting heavier, I sighed with relief, and tried to fall back asleep. But the word cockles popped into my traitor of a mind.

I knew that cockles, a mollusk, were not kosher. But what about the cockles of my heart? Are they kosher? And if not, what does that mean about me, as a Jew? Do I have non-kosher bits inside me? Is that even a thing?

I had to look it up. Back to my phone. In Dictionary.com I found that a cockle is “any bivalve mollusk of the genus Cardium, having somewhat heart-shaped, radially ribbed valves, especially C. edule, the common edible species of Europe.”

Hmmm… “somewhat heart-shaped.” Was that where the phrase “warm the cockles of my heart” came from?

According to the Urban Dictionary, a cockle also refers to the ventricles of the heart. I was getting somewhere. I decided to look up the phrase.

From the website “World Wide Words” I learnt that it means inducing “a glow of pleasure, sympathy, affection, or some such similar emotion.” That made sense.

Satisfied with that explanation, I set my phone on the nightstand and settled back into my pillow. As I was falling asleep, a ditty drifted by, “Alive, alive, oh.”

It’s been several hours now, dawn has come and gone, and I can’t get it out of my mind:

In Dublin's fair city
Where the girls are so pretty
I first set my eyes on sweet Molly Malone
As she wheeled her wheelbarrow
Through the streets broad and narrow
Crying "cockles and mussels, alive, alive, oh"

Alive, alive, oh
Alive, alive, oh
Crying "cockles and mussels, alive, alive, oh"



Journeys and Destinations

On the phone to my friend, Cindy, voice quivering, occasionally leaking tears, at one point sobbing, I hoped for some answers. What was going on? Why was I so upset?

When I noticed that over the last couple of weeks I occasionally became weepy for no apparent reason, I thought that hormones, or exhaustion induced issues with sensory overload, were the culprits.

But today’s meltdown felt different. This was far too extreme to fit the label “sensory overload.” In fact, there had been no high volumes of sensory input to trigger such a reaction..

Except that the previous day, I had suffered a severe bout of sensory overload. It took me by surprise. Though I’d just left a crowded event, I was reacting far too strongly than I would have expected. Also, the event wasn’t all that crowded—I should have experienced little to no difficulties.

During my first few years of recovery, balance issues and tears were the first noticeable signs of having trouble processing high volumes of sensory input. And the tears were always followed by a full blown meltdown. Fatigue tended to make me more vulnerable to sensory input

In time, as I recovered from my brain injury and fatigue became less than an issue, the symptoms of overload, became less obvious, a momentary clumsiness, a fleeting hint of dampness in my eyes. What was yesterday’s episode about? I didn’t think my recent levels of fatigue were any worse than any I had experience over the past few years.

https://www.goodfreephotos

https://www.goodfreephotos

And today, this inexplicable bout of crying… Was it related to yesterday’s difficulties? In the past, during the first few years into recovery, sensory overload was followed by a couple of days of emotional fragility. But that hadn’t really happened in several years.

Was depression the cause? That didn’t feel quite right either. And there was no horrendous headache, the harbinger of another brain bleed. So what was going on?

Cindy, suggested it was grief, but that didn’t sound right. Over the last few years my grief over losses incurred by the bloody brain only emerged rarely, and lasted no more than a few minutes. I was well on my way to acceptance, to the point that recently I started questioning my past insistence that acceptance is a journey, like Buddhist say of happiness.

Shortly after the brain surgeries, it made sense that I was grieving. Back then, I poo-pooed assurances that eventually I would accept my new normal. I equated acceptance with defeat. I could not, would not, live the life of an invalid. I was no malingerer.

My neuropsychologist offered another view of acceptance, that it was about learning to live with brain injury, rather than beinge afraid to live. His explanation sat well with me. Yet the use of the word “acceptance” still bothered me.

As I healed and learned to live with my brain injury, the term grew on me. I became able to accept the term. But I insisted that acceptance was a journey rather than a destination. I was sure that though I was definitely headed that way, I would never actually reach acceptance. But recently, I started believing it was within reach, that I would achieve acceptance soon, that perhaps I had actually arrived.

I asked Cindy, “But why would I be grieving now? What has changed?”

She answered without hesitation, “There’s your sister, and listening to your audio book...” and it all clicked. She was right, I was grieving, in a big way, and for good reason.

My younger sister also has cavernous angiomas scattered in her brain (Yes, it is a hereditary disease.) She also suffered brain bleeds. And few weeks ago, she underwent brain surgery to prevent future bleeds.

I visited her a couple of weeks ago to provide her with much needed emotional support and found myself confronting my own memories of the nightmare that used to be my life. In addition, over the last few days, I’ve been listening to the audio version of my memoir of recovery from my brain surgery (But My Brain Had Other Ideas).

Of course I was grieving.

This also explained the previous day’s case of severe overload—whenever I was emotionally fragile, I was also vulnerable to other stimuli. Overload is not caused just by high volumes of sensory input, but also by high volumes of any type of input, emotional, cognitive, and, of course, fatigue.

I lamented to Cindy, “Will there always be grief?” even though I knew the answer. My emotional reaction was akin to the grief experienced in the wake of the death of a loved one. And grief never disappears, it just becomes more bearable in time, resurfacing less frequently. You merely learn to live with it.

So no, I have not attained acceptance. I never will. Acceptance is a journey not a destination.

Though I am well on my way.

Labels and Stories

He wore his favorite jeans, soft with wear, in contrast with his white button down shirt, chafing at the collar. He almost raised his arm to ease the discomfort at his neck, but it was safer to stay still.

There was nothing to differentiate him from the men blocking his way, except for the shoes. They wore sneakers. He wore his old dress shoes. And his shirt was wet with perspiration.

And they had machine guns, all pointed at him.

He could see it in their eyes, hard, calculating—are you one of us, or one of them? Friend or foe? There was no way to tell. Until he opened his mouth and his speech pattern gave him away.

Here, the label, friend or foe, was a matter of life and death. The word “stranger” would mark him as a target.

James was black, beaten to death, Jamal was a Muslim, attacked in broad daylight, Kelly was raped, just because she was a woman, in the wrong place a the wrong time.

Labels, whatever they may be, dehumanize, sometimes evoking violence.

Friends

Friends

If the man at the roadblock were given a chance to tell his story, of his background, his family, and his potential killers were to listen, he would no longer carry the label of stranger.

In most cases, the “wrong” label may merely lead to suspicion.

Fortunately, my label as a mathematician often evokes glazed looks, not violence. And at social occasions, if I add the label weaver, disinterest sometimes transforms into curiosity. And the curious more often than not, ask to hear the rest of my story.

I am not only a mathematician and a weaver. I am also a loving mother, a textile enthusiast, a thriving brain injury survivor, and an award winning author. But however many labels I carry, they only mark the beginning of my story. If you want to know me better, you need to listen to my stories, and I have many. About my love of teaching, my textile collection, my book about ethnic textiles and my memoir of recovery from brain injury, my family. Some I have already told, but most have yet to emerge.

And if you tell me your story, about your journey through childhood , your family, your growth, your life, I will listen.

We need to communicate, so we can connect and shed the label of stranger, so we can become friends.

The Arizona Summer Oven

Arizona Oven.PNG

Hot dry air slammed into me as I exited the cinema. My brain, heavy, pressed against my skull, cutting off my neural pathways. I couldn't breathe. I couldn't move

A thought, sluggish, rose in a thick bubble to the surface of the thick soup that was my mind. It became recognizable when the bubble popped in slow motion. “Like exiting the hotel in Phoenix.”

The first stop after being discharged from the hospital in Phoenix where I underwent the surgeries, was the nearby hotel. The next morning, it was time to return home.

Standing in the lobby a few steps away from the entrance to the hotel, swaying in a non-existent breeze, leaning heavily on my walker, I watched for the limousine that was to take us to airport. When it finally pulled up, desperate to get off my feet, hanging onto the walker for dear life, I shuffled over to the entrance.

As soon as the automatic door slid open, a blast of Arizona air slammed into me, filling my lungs to capacity— I couldn’t inhale, I couldn’t exhale, I couldn’t move.

It seemed like an eternity before I became able to think. The notion of leaving the cool air behind me was abhorrent. But I realized I had no choice--my grip on the walker was growing weaker as my balance deteriorated. I had to get off my feet, to rest my traumatized body. In pain, I made my way across the endless sidewalk. I focused on my feet at every step, willing them to wade through the heat radiating from the sidewalk. The Arizona oven-like heat hindered my progress, every motion a struggle.

Did I open the limo door? I don’t remember. I couldn’t have. It must have been the driver. I do remember finally being able to breathe unimpeded when the cool air from the interior mingled with the hot as I neared the open door. And I recall a brief moment of hesitation while I tried to figure out how to enter the vehicle. The next thing I remember was throwing myself into the dark interior. I must have turned the walker and positioned myself between it and the car. I must have pushed off the walker.

I recall being surprised as I sank into the plush upholstery. I luxuriated in the softness of the cushions that cradled me--this was the first time since the third surgery that I was comfortable, that I wasn't in pain, the first time I felt a wisp of hope about my future as a brain injury survivor.

 

Mum

Pixabay https://pixabay.com/en/flash-thunderstorm-super-cell-2568383/

Pixabay https://pixabay.com/en/flash-thunderstorm-super-cell-2568383/

I remember standing with Mum at the window, watching a thunderstorm. I remember oohing and aahing over the light show. Taking fierce joy in the pouring rain, the glorious lightening preceding the crash of thunder, I forgot my brothers and my mother beside me. At one point, shortly after the show began, Mum retreated to stand behind us. I assumed that she was merely making more room for us.

It was only years later that I learned that she was terrified of thunderstorms.

We went to the beach almost every weekend during the summer. I remember Mum sitting in the shade reading a book while we played in the water—she didn’t know how to swim. She tried learning a couple of times, but was unsuccessful. She told me she was too old to learn, too afraid of the water.

I remember tumbling around in the waves, losing all orientation, the sand churned up, I couldn’t see. I had to trust the waves to throw me ashore before I ran out of breath.

Dad was usually with us in the water—I remember swimming along side him, reveling in his company, proud of my skill and stamina. We often swam far, out of Mum’s sight. Was she afraid for me? Perhaps even terrified? I never thought to ask.

I was an adult when she finally told me that she had encouraged my brothers and I to take on activities she couldn’t participate in because she didn’t want us to miss out as she had. She didn’t want her fears and limitations to affect us.

Mum was born with a condition named talipes, more commonly known as clubfoot. In her case, both feet were turned inward at a ninety degree angle. By the time she was school-age, she underwent several surgeries to correct the problem and, but they were only partially successful.

I recently asked her how it impacted on her life. She told me she couldn’t run and when she walked up stairs her feet turned in. She added that though it was limiting and at times made her feel self-conscious, she didn’t see herself as disabled.

I know her limitations went beyond her inability to run. She loved cooking, but every so often, she had to take breaks to put her feet up. She also had trouble finding shoes that fit properly and didn’t hurt. In addition, she had issues with her balance. She never learned to ice skate or ski, and though she tried, was never able to ride a two-wheeler.

Despite her difficulties, Mum excelled at some physical activities, belying her appearance—she was under five feet tall, looked frail, and was visibly unsteady on her feet.

She loved dancing, and was good at it, as was my father. They danced everything from the foxtrot, salsa, and waltz, to jazz and rock. At parties, their skill often elicited audience applause.

Mum was also a wicked table tennis player who loved surprising first-time opponents with her skill. After crushing her rivals with her deadly serves, powerful volleys, and good reflexes, her opponents often refused her offers for a rematch.

She may have been unable to run, but she usually walked at a fair clip. I remember myself as a kid, having to hustle to keep up with her. And although she never joined us on long hikes over uneven terrain, she often walked down to the shops and back—a good twenty minute walk each way.

Now, her age has caught up with her. Her balance is more of a problem as are her issues with her feet. She walks at a slower pace and no longer dances. She uses cane. But I strongly suspect that given the opportunity to play ping-pong, she’d throw all caution to the wind, and crush her opponent, probably knowing full well that she’d pay the price later on.

Was she the source of my courage and resilience through my recovery from brain injury? The reason that despite being fully aware of my limitations, I refuse to give in to the bloody brain completely? Why I continue to push some of my boundaries, knowing full well that I’d pay the price later?

Brain Injury--Pros and Cons

Cons:

tulip.jpg
  • Loss of independence

  • Sensory overload (i.e. difficulties processing sensor input)

  • Emotional volatility (including depression, anxiety, rage)

  • Headaches

  • Seizures

  • Memory loss

  • Short attention span/easily distracted

  • Damaged sequential thinking

  • Trouble with task initiatio

  • Pros:

  • Heightened awareness (including self-awareness)

  • More in tune with environment

  • More of an extrovert

  • Improved ability to connect with people

  • Increased ability to discover the passion and joy in life

  • Heightened creativity

  • An amazing journey

P.S. Through my brain injury, I discovered writing and rediscovered teaching. I am an author and much better teacher.

P.P.S. My gains far outweigh my losses. I wouldn't want to repeat the experience, but I wouldn't undo it. Through my journey, I have grown as a person and I like who I have become better than the old me.

On Death

I’m sure there are many of us who while experiencing a life threatening ordeal question our feelings about death.

The Lady of Shalott by Henry Peach Robinson (1830-1901) (labeled for reuse)

The Lady of Shalott by Henry Peach Robinson (1830-1901) (labeled for reuse)

I remember my fear of dying during my first few months after my brain bleeds. Each seizure scared me—would this one kill me? Every brain MRI or a CT scan brought on fear that I would die inside the machine, alone.

Between extreme headaches, seizures, and cognitive issues, my entire world revolved around the bloody brain. Doctors’ appointments, physical therapy, ER visits, and hospitalizations took up much of my time. I could no longer drive, work, or mother. I shuffled through my days, focused on survival, merely existing.

After I started taking anti-seizure meds, the seizures were milder and occurred less often. Around the same time the frequency of my trips to the ER diminished, and my life, such as it was, settled into a pattern.

Dependent on others for rides and unable to work, I spent most of my time at home, alone. Tiring easily, subject to crippling fatigue, and prone to vertigo and loss of balance, I was incapable of doing much.

One day, waking up from a much needed nap, my mind wandered, and the topic of death emerged from the crevices of my mind. My quality of life, or lack thereof, seemed unbearable. How much longer could I tolerate with it?

What if I were to reach the point where I felt the need to actively seek death? I wouldn’t want it to be messy and it wouldn’t be right to ask anyone to help. The only logical option was medication. I would need something effective. Was there anything in my growing arsenal of medication that would work quickly, with little to no discomfort. I started inventorying the meds on my night stand. Anti-seizure-meds? No. Advil—maybe. What about blood pressure—

I slammed the lid down on my thoughts.

It was one thing to experience a fleeting thought about suicide, but quite another to explore methods. And so rationally, too.

I have since been diagnosed with severe depression and have experienced several bouts of suicide ideation.

Several years into my recovery, yet again waking from a nap, my mind roamed. Once more, I found myself exploring my feelings about of death. As my thoughts wandered, it occurred to me that death no longer terrified me  as it had during the early days, after the bleeds.

Intrigued, I dug deeper. Did these thoughts count as suicide ideation? It didn’t feel the same. There were no shades of “they’ll be better off without me” or “I can’t bear living like this.”

This felt more like a state of being, a level of acceptance.

I live with an axe hanging over my head, though it is usually off my radar. I am very much aware of my mortality—the threat of new bleeds will always be with me. Angiomas can become symptomatic even if they don’t bleed, and I have several remaining in my brain. Also, angiomas can grow back.

As I explored my emotions, I realized that my awareness of of my mortality has expanded beyond the bloody brain. When I travel, and encounter passengers who are afraid of flying, I wonder about death from a plane crash. Every time the thought appears, I shrug internally. There isn’t anything I can do about it.

Searching through my inner files, I found that I couldn’t detect any traces of fear of death from causes beyond my control. Of course, I’d rather it were quick and not too painful. And it would be nice if the timing weren’t too inconvenient.

I certainly don’t want to die. In particular, I don’t want to harm my loved ones, especially my kids.

Also, I really like my life now. I would really like to see my memoir do well and make a significant difference in the world. I would like to finish the other books I'm working on.

But ultimately, if it happens it happens.

Moving on.

 

The Other Shoe

Back from a trip to visit my family in Israel, I’m waiting for the other shoe to drop.

Shoe.jpg

On my first day back, I was exhausted, which was only to be expected. After all, I was jet lagged and combined with the usual bloody brain-related fatigue…

The bloody brain has taught me long ago that the other shoe would drop, at some point—an excruciating headache was bound to compound my fatigue.

But there was no headache.

On day two, still no headache, nor on day three.

Throughout my recovery, traveling drained my resources. During my trips I spent as least one day confined to a darkened room with a headache that defied words. And I came to expect being incapacitated for at least a couple of days upon my return home.

At the end of that third day, a thought crossed my mind—could it be that there won’t be a backlash? Then I made the connection—after my return from the last couple of visits, the headache was less intense than it had been in the past and it lasted no more than a day. And now, here I was, back from a whirlwind trip, at the end of my third day since my return, and there was no sign of the price I’d expected to pay, even though I was exhausted. Clearly I was continuing to heal. Moreover, I was making significant progress in my recovery.

I couldn’t help but allow myself to hope. Had I got away with it this time? Would there be no price to pay? I took my musings a step further: had I recovered sufficiently from my brain injury that there were no horrific headaches in my future? Could it be that in time, I would be completely back to the old me, the neurotypical me, as I was before the brain bleeds?

I caught myself at that last thought. I always prided myself on being realistic—I knew better than to be that optimistic. Though maybe, just maybe…

During the night after my third day, the bloody brain struck with a vengeance with a headache that saturated my entire world with pain. None of the pain killers I tried even took the edge off and the agony seemed to last forever.

The following evening the headache started abating and by the time I retired for the night, it was gone. I finally became able to think and my realistic nature took over. The damage to my brain was definitely here to stay. I would never recover fully.